Great Monday

Hello Leukemia Nation……here’s the monthly update and boy what a Monday it was LOL. Do you expect anything different from me though, ha,ha! Alarm goes off at 0600 – so not ready to get up – still medicated lol. 0615 up……swallowed my fist full of pills, ate cereal, fix hair (ya right – not), brushed teeth, dressed, and out the door at 0645 and on the road to Barnes. Get to lab only to find my dual port will not draw blood ( L O V E L Y). So since I have a dual port I had two needles sticking out of my chest because we had to put Alteplase (a medicine that sits in the lines of the port and eats away at any clot that may have formed and the end of the lines). This medicine has to sit for quite awhile soooooo that meant they had to find a vein to draw labs – needle stick number three (yaaaaa). Went to Dr. he gave me a big hug because he feels bad I don’t feel good. Sweet man but, no sympathy from him LOL – that’s why I love him. We are know I have graft vs host disease in my GI tract as my labs show it. He added an additional steroid that sits in my gut. He has also ordered and Endoscopy (call me Joan Rivers- except they will be looking at my esophagus and stomach not my vocal cords). He is also afraid that the chemo may have damaged my sphincter (flap that opens and closes) between the stomach and esophagus. My eye sight has deteriorated which could be chemo or transplant related. I have an eye appointment this week – hoping no cataracts but, if so we’ll deal with it. My teeth are super sensitive and that is due to the chemo and nothing we can do about it (poop!). I’ve learned to deal with and I will – could b worse. I can now start working out with my resistance bands but, can’t lift weights (afraid I will pop my port out – not good). I was excited about that. Next visit I will get my flu and pneumonia shot. My big bulky mask will be making it’s debut soon with flu season coming. I will only have to wear it while being in confined spaces but, that’s ok might just have to bling it up LOL. I had my last infusion as I have had the maximum dose. We will wait and see what happens. Oh I also bought a beautiful $200 brown bag…………….OF MEDS! UGH! I shouldn’t complain as my insurance has been great. I did call my insurance when I got home because, the pharmacy tech was no help and I was getting pissy with him so, rather than drop to my knees and pray I didn’t choke the boy(not really) I walked away. Prayer probably would’ve been good and I will thank the Lord I did not reach through the hole in the window lol. Hoping for a reimbursement but, not holding my breath. Just glad I have insurance. I hope you all had a miraculous Monday! Keep the Faith, friends!!!

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