Category Archives: Induction

My journey through the first phase of Leukemia Cancer treatment.

Prayers from friends and family

 

Lisa Kiel thinking of you!!!!

 

Keep the faith! Thinking of you and praying for a successful bone marrow transplant! — with Lisa Kiel.

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Prayers for you today Lisa Kiel!!!!!!!!!!

 

Lisa Kiel God is with you and guiding the surgeons on your BIG day! {{{{Hugs}}}} love, and prayers sent your way!!

Lisa, You are an amazing young lady! Not only because you are my niece, but a true friend to so many, you have a heart of gold, your laughter is contagious, your personality always shines thru. You have such a positive attitude and I believe that God will see you thru this ordeal. I pray everyday for you and pray for strength to get you thru this. I know you have wonderful Angels, also, watching over you! YOU CAN DO THIS!! Keeping the faith! Love you sweetie! (On this day 31 years ago, I married your uncle Leonard, so, it’s going to be a great day!)

Tomorrow will be a new beginning for one of my dearest friends. Lisa Kielwill be having her second birthday beginning with a bone marrow transplant. I called her this morning, thinking the transplant was going to be done today and said Happy Birthday! I think she thought I was trying to call my mom, since it’s was my mom’s birthday. (Happy Birthday Mom). I told her, “this will be your new beginning”. Please pray tonight for total healing, speedy recovery and a great new beginning. Amen

 

 

Getting so close to day Zero

faithvsfearI finished my last dose of Busulfan at 6pm so I move on to the BIG DOG tomorrow and Monday. Can’t believe I’m this close to transplant day kinda gives me a weird feeling. Maybe the kind of feeling you get before you jump out of a plane or bungie jump I don’t know.LOL Kathy Mullen came down to see me today, what a surprise! Thank God I decided to bathe today ha,ha. I loved the visit, brightened my day! I’ve still been able to maintain my taste (Thank goodness) I’m sure after the BIG DOG I won’t have much so I’m making the most of it. The food here is delicious lol. I have to tell you this morning the nurse practitioner whirled in here like the tasmanian devil and danced around while he read my history. He wore glasses but, held the paper up close to his left eye as he read. What a goofball. I’m sure he’s a brilliant man but, geez louise. When he left I looked at Mom and asked if that just happened. She said it sure did, thank God Chicken wasn’t here cause she would’ve said What the Hell was that? Exactly what I was thinking! Oh well, he did his job and seemed to do it well that’s all that matters. I was kind of hoping a I was dreaming though ha, ha. Looks wet an slick where I am. Hope you are all staying safe. Keep the Faith!

Chicken stays the night

IMG_0431So, Chicken and I are too loud – she got sent home. Kidding just kidding! We were loud but, didn’t get in trouble. She left a day early because of this stupid weather. My Mom is back and glad to be lol. Don’t know why she’s not missing anything lol. Chicken and I roamed the halls (good for me to walk as my feet are a little puffy), checked out the family lounge and was a little disappointed in the items in the vending machine (everything was baked, like baked chips and shit). If I’m going to the vending machine I want something GOOD! Oh well, they say my appetite will quit here soon – we will see. Today, Chicken was hanging some positive quotations that Tammy Branham printed off for me. My door must remain shut so she made a collage of prints on the back of the door AFTER she washed the whole back of the door. YES YOU HEARD ME CORRECTLY Alice (I mean Chicken) washed the door. She said it had like WD40 on it or something. Heaven forbid! I’m laying in the bed contemplating a nap as she is hanging these signage and I hear an organ. I said to her, did you hear that organ and she began laughing hysterically so, I said was that an organ or did you fart?! With that said we were both laughing. She said oh yes Lisa I can fart hymns that sound like an organ playing. LOL She was wanting to give me a make over before she left today. She wanted to put concealer on the dark circles under my eyes, bright lipstick, and lots of rouge and large hoop earrings! Don’t know if she was going to pimp me out or what. I put nothing past her. I slept with one eye open at all times lol. My Nurse Practitioner was quite amused with us (imagine that). He didn’t want to leave our room as we entertained for him. We told him to come back anytime.LOL Tonight will be filled with dinner, dateline, and chemo. Whoop Whoop! Happy Friday everyone. Be safe out there! Keep the Faith with me!

The confession

Hi everyone! Wish I were updating you all from white sandy beaches and a beautiful blue ocean ( a girl can dream). Barnes is very nice and my room has a great view ( thank God). I finally slept. Ya was awake early Tuesday to head down here, got blood work, then they shoved a garden hose up my neck and out my chest. What fun!!!! Stayed awake all night and was up all day Wednesday. Needless to say I needed sleep. Finally crashed at 10pm Wednesday. I felt refreshed today. My neck is healing and I’m getting use to it. My chemo started Tuesday night (no wasting time here). I will get 16 doses of this Busulfan. I’m halfway today as I get it every 6 hours. Sent my mom home for a few days and Chicken is here till Saturday. She was watching some of my educational videos assigned to me and we learned that this Graft vs Host disease (from the transplant) not only effects my skin but, may effect the ol vajay jay too. Seriously, just put me down now! Lol. Moving on……needless to say we have taken over the floor. We will be performing in the family lounge every night at 7 pm lmao. Took communion yesterday as they have communion stewards ( love that) then a Priest showed up…..you can only think what I was thinking lol. He was an Italian man and funny. He asked what he could do for me….. I said well I just had communion (I mean I didn’t want to hog Jesus). He said how about anointing of the sick. I thought oh that would be nice so I said sure. He then said how about confession. OH LORD I thought!!! I can’t do that in front of my mother for Petes sake what was he thinking. He could see the fear in my eyes and the blood rush from my face lol. He said since you are sick I can abolish your sins by asking you two questions. I thought that was a good deal. He said now Al Capone went to confession (the Priest is talking in his Godfather voice) and he says Father I killed the guy but I’m not sorry. The priest said now that’s not confession so I ask you ( oh Lord here it comes) Lisa are you sorry for your sins. I said yes. He said I ask you again Lisa are you truly sorry for your sins (was I not convincing I mean I am) I said yes again. I was abolished. Thank you Jesus!! Anyway it was very nice to meet him and I hope to see him again (and not when I NEED one). Thanks for stopping by. Keep the Faith!!

A Well Oiled Machine

Talk about a whirl wind of a day……holy shmoly they move like a well oiled machine around here. Had labs at 1pm, a Neostar (line that goes into my juglar vein in my neck and exits my chest) placed at 2pm, and was in my room (5941) by 3:30/3:45, chemo began at 6pm. Not waisting any time, lol. The current chemo I am getting is Busulfan and I will get 1800396_10202444448985927_1683834233_n16 total doses of it. I have to take an anti seizure medication with this as it is known to cause seizures. Sounds like a lovely drug doesn’t it? LOL I was awake the whole night. I mean wide awake! Not sure what that was all about but, they are going to knock my ass out tonight even if they have to hit me over the head with a bat. This is CRAZY! My mom slept beautifully lol. Food here is pretty good. Mom went for a walk this morning and scoped out the hospital. It’s an amazing place. Haena sent me a text message letting me know she got employee of the month at Scheels. How great is that? She got employee of the month and employee of the year in 2012. Must take after her mother ha, ha. Totally kidding her Dad is a hard worker too. Not much else to tell today. Hoping to nap some. Getting ready for my 3rd dose of chemo – bring it on! Have an awesome Hump Day! Keep the Faith

Heading to Barnes

West bound and down, loaded up and truckin’,
a’we gonna do what they say can’t be done.
We’ve got a long way to go, and a short time to get there,
I’m west bound just watch ol’ Lisa run! (Lol). I thought that song was appropriate, just had to modify it! Bring on the day, let’s get it this going so I can start marking off the days on my calendar! Heading out about 1030 as I have labs at 1pm, 2pm a line will be placed in my chest, and 3pm check in. I won’t have a room till a little later but, that’s ok cause we will need to eat! I can’t have anything by mouth after 7am. JERKS! I’m gonna load up after 3pm. I’m gonna have salad and hopefully fresh fruit cause they will take that all away too. My gosh I feel like I’m going to fat camp ha, ha! Have a safe Tuesday everyone. I will update you as the shit starts hitting the fan!!! Keep the Faith!!

Happy Birthday Princess

It’s a tradition at my house that the Birthday person picks what they want for their birthday dinner and we all gather to celebrate. Tonight Haena chose Spaghetti (I make my grandmothers sauce), garlic bread, and Caesar salad. We had birthday cake for dessert. Her party favors for her Big party came today. I rented a party bus to take her and her friends to Fast Eddies. She has a 21 Tshirt, light up 21 crown (so they don’t lose her lol), and what’s a party without party beads lol! Oh to be 21 again. She renewed her license and we got the giggles because her face takes up the whole square you can’t see anything but her face and hair. She said “my gosh I look like a lion with its mane” lol. It was pretty funny. I have to say her birthday celebration was a success and I’m hoping she enjoys Saturday night. I can’t believe it was 21 years ago today that she blessed us with her presence. Our family would not have complete without her. Her witt will keep you in stitches, her personality is like no other, and she walks to the beat of her own drum. I could not be any prouder of her and I’m glad God have her to me! (Glad he gave me Broc too). Happy Birthday to our Princess!

My Hands Are Shaking and My Knees Are Weak

My hands are shaky and my knees are weak
I can’t seem to stand on my own two feet
Who do you thank when you have such luck? Oh, no I’m all shook up!!!! GOT THE CALL TO COME TO BARNES. AAAAHHHHHHH. I will be admitted January 28th! Let’s do this people! I told the kids I’m feeling excited, scared, reluctant, etc. I said it was like when I was pregnant with Broc (my first born) I knew in 9 months he would arrive (so you know it’s coming) but, when the doctor actually says you are going to have a baby today I wanted a refund, wasn’t sure I was ready for it and I’m not sure I would’ve bolted if I could’ve lol. I’m headed in to uncharted waters………..well I guess it’s no different than plunging into the Atlantic Ocean on the Barrier Reef to swim with sharks (no cage involved and I was sober WTH?). I guess if I survived that I can do this too lol. I have to say I’m ready to get this behind me and get moving forward. Tomorrow is lab day, hoping I’ve hung on to some of those platelets cause I don’t feel like staying in Springfield all day (makes for a long day). Oh, well just gonna make the best of it. Hope your Tuesday was a good one. Thanks for dropping by tonight. Keep the Faith!

Monday, Monday

Monday, Monday can’t trust that day. Monday, Monday sometimes it just turns out that way. (Love the Mamas & Papas) So today was lab day and again – NO PLATELETS (the part of the blood that plugs a hole). My neutrophils (infection fighters) are coming up slow but sure so that was a positive. Spent a couple of hours in day hospital getting another unit of Platelets. They have ordered HLA platelets for me but, those won’t be available until the end of the week. What HLA(human leukocyte antigen) means that someone else matches by antibodies in my blood therefore my body will not reject them. I must be high maintenance lol. Still waiting to hear from Barnes on a definite date. I’m ready to get this behind me and move forward. Did I mention that I have to have all of my childhood immunizations again once this transplant is over? Ya…….go figure! I was really hoping to get back to work by the end of the year but, that’s not a possibility with the immunization issue. Dr. Chaudhary (Pedi Infectious Disease Doc) told me today to focus on one thing at a time, like getting this transplant first lol. He knows how impatient I am. So, I guess I will have to pick up a hobby or something because, I will be stir crazy. Chicken says I need to learn to crochet………..A NO! Pinterest here I come. Hope you all had a good Monday and your week has started off on the right foot! Keep the Faith!