Woke up to an empty tank. Ya that’s right, platelets were LOW and so was my hemoglobin. SOOOOO I am getting 2 units of platelets and another unit of blood today. Geez Louise where is this all going? LOL. Still no neutrophils so I have to keep giving myself shots of neupogen to help regenerate them. It’ll happen just have to wait (you know me NO PATIENCE!!!!). I did manage to get down the hall to shower – felt like I ran a marathon (craziness). I then came back to the apartment and cleaned house a little bit in case company should come. It took me 15 minutes to change the damn bed, I had to keep taking breaks. I sounded like a lunger for crying out loud! Got in the closet to get a few things and there staring me in the face was my Skinny Girl Margaritas – I could have cried (I bet they taste like metal too). Had to restart the stool softner as the ol bowel as let up (thank God). Rash is starting to go away and burns are starting to peel (grossness). I’m like a snake shedding it’s skin lol. Hmmmmmm what kind of snake might I want to be. I won’t go there could get me in trouble. Waiting for Dr. Mochurnik to stop in and see what he has to say. I’m ready to get the hell out of dodge but, know it’s going to be awhile. That’s ok gotta do what I gotta do. Hope you all have a wonderful day – stay cool!! I might lay in the window sill today and tan. Forgot my sun block though. Oh well. Keep the Faith!
I have to share this gift I received. My sister got me a Dammit Doll. It states on the front: whenever things don’t go so well, and you want to hit the wall and yell, here’s a little dammit doll, that you can’t do without. Just grasp it firmly by the legs and find a place to slam it. And as you whack the stuffing out yell dammit! Dammit! Dammit! Everyone should have one lol
Oh joyful day! Awoke with a raging headache, you know the kind where you feel like your head is being squeezed in a vice and your eyeballs are going to pop out of your head. Ya I’ll take one of those said no one EVER! Morning labs showed low platelets (part of your blood that plugs up where you are bleeding) so I received a unit of them. Took Norco for my headache – did nothing (which I figured it wouldn’t cause it doesn’t help with vascular pain) but, I thought it might knock me out. Oh no, just made me loopy. I was saying some stupid shit! After my platelets (aproximately 1.5 to 2 hrs later) I became short of breath and still had the headache. Guess what platelets were even lower so had to have another unit. Breathing became better just was dragging ass. My Aunt Paula and cousin Missy came to see me and brought me Cafe Moxo – LOVE IT. They brought me chicken pot pie and it was delicious (didn’t taste like a metal fence) and some cupcakes. Made my day. Of course Mother was here and was going to spend the night but, I made her go home. My goal today was to get a shower but, that didn’t happen. Hopefully tomorrow I can take one. I do bathe the important areas everyday people I just like to rinse the funk off every other day. My bat wings are gone from underneath my eyes so I don’t so much look like a freak show. My stubbly hair is falling out, can’t wait to shine that head! I’ll get her shining and slap on some hoop earrings and call myself Mrs. Clean. You will be happy to know I’m back to stool softners again so depends for me. I’m moving upward now I think. I thought about heading downtown for a few beers later – mom took home my clubbin close (how dare her). My girlfriend sent me a text this morning and asked what I was doing and I told her cleaning house lol. I was kind of – cleaning my new apartment up. Keepin it real and Keepin the Faith. Love to all!
Bone Marrow went well, had to a pregnancy test prior to sedation and guess what I’M NOT PREGNANT! I think this is the first nothing out of the ordinary has happened lol. Thought you might want to know. Keep the faith!
Hello Orange Nation! Don’t have too many funny things to tell today as I slept most of the day away. Awoke with fever, and rash (looks more like a burn) across my abdomen. Was nauseated (love that feeling). I took some good meds and slept from about 0930 until 4PM. Mom helped me get a shower this evening to get all of the funk off. OMG my armpits smelled like a man and I’m pretty sure the hair under my arms are just like them too. EEEWWW! I guess I’m going European. Be thankful ladies you can shave (I can’t because I have no platelets or neutrophils). Okay non medical people that means I could bleed out and not able to fight infection. Got my bed changed which always feels nice. No active bleeding today only a traveling burn. I have ordered tomato soup and a grilled cheese – nauseated looking at but going to try and choke the shit down. I’m sure the soup will taste like a metal fence and the sandwich will scrape the shit out of the roof of my mouth – I will conquer this! The diarrhea has slowed so I’m sure I will be once again introduce to a stool softener (never had to take them before) because they don’t want straining and the Roid is finally healing. Va Jay Jay has cooperated today thank God so we are good there. Other than sleeping most of the day and the nausea I would have to say it was an OK day. OH almost forgot…….I take communion everyday and the communion steward came around and asked if I wanted communion. I told her I was too sick, I mean seriously would it be sac religious to throw up Christ? I’m just sayin. Well I guess I will get off of here and eat the metal fence. Hope everyone had a beautiful Sunday Funday – it looked nice out. I’m getting into week 2 half way there. Let’s do this thing! Keep the Faith!